Thursday, 25 June 2015

Reasons to be happy in June

Sometimes it gets a bit much and I have to just take a moment to remember that life is going well and I have many reasons to be grateful. today is one of those days so here are some moments that I am grateful for - 
An afternoon in Scolton Manor! when I was in hospital my sister bought me a copy of "the simple life" magazine. I love that magazine so much. I actually get excited at the thought of looking at a new one. I have not felt like that since "girl", "jackie" or "my Guy". I used to look forward to the day they came out each week. Anyway, this particular issue had a section on wild flowers. I sat and just looked at it for ages, longing for the day that I could get out of hospital and see some actual real life wild flowers. I would say it doesn't get much better than that but stick my gorgeous nephew amongst the wild flowers equals heaven! ;) 
Me and my mum :) I like this photo as I am standing very straight in it and I think I look quite well. It takes quite a lot of effort  to stand tall and feel like I look nice so got to try and capture the moment if it happens. 
This, also happened. Which I thought was so lovely. My friend took me on a picnic to a nearby beach called Sandy Haven. She had packed a basket full of goodies including a small bottle of wine for me. It was a lovely afternoon and we had so much fun. 
The picnic basket :) 


As I had gone out for a meal to celebrate my stroke anniversary I had promised Cerys I would take her out for tea the following Friday. She wanted to take her cousin Rebecca with her. I didn't fly them over to New York unfortunately but did go to an American themed diner. I had a Reeses thick shake which was beautiful! Yum. 
Then Aunty Ceri came home for the weekend and we had a sleepover. 
Along with some singing and dancing! Not the best photo but the best of a bad lot- no offense girls! 
I enjoyed seeing Cerys riding her bike 
And then I shall insert some random photos I have taken over the last two weeks here- 
So this is very true indeed :)- 

Balance, bath time and freedom

Last year I never thought I would be able to actually enjoy a long hot soak in the bath again,Something I have previously always loved to do. When I came out of hospital I wanted to attempt to get in the bath, With the help of my mum I could get in and get out again but once in I could not have the water anything but lukewarm as my left side was now over sensitive, same as having a shower, I could not have it too powerful or too hot. That was one thing that not one person had mentioned or warned me about. I asked a occupational therapist during my visits to outpatients was it normal and she put my mind at rest by explaining that it was my brain getting used to different temperatures. I have not attempted to get in a pool as yet but I am hoping to very soon. I, of course want to try swimming but also I really want to see if I can handle the temperature of the water. 
I had a lovely bath last night and even though I am so grateful to every person who helped me to shower or my mum, getting me in the bath, I don't think I will ever stop feeling thankful for just being able to get in the bath all by myself and shutting the world out for a short while. There are many unpleasant things about a life after a stroke but I hated the fact that during most of my time in hospital which was over a month I did not have a single moment just to myself. That is obviously a much better alternative than being left, helpless on my own of course but to have all your independence and freedom stripped from you is a tough one. People always say to me "you are so strong and brave" I don't feel strong and brave, I took the route which was easier for me. I do not want to be looked after for the rest of my life. I accept any help I am given and will try and fail probably more times than anybody knows but I would rather try once, fail and then ask for or accept help as life after a stroke is difficult and tiring enough, why make it any harder? I know and accept (although of course, I get upset at my body and brain too) that sometimes my body is just not ready. It is all about - 

Giving yourself time to heal
And 
Balance 

I have never been very balanced or the most patient but as well as getting stronger each day I am more balanced and I love balanced me :) 

Saturday, 20 June 2015

Taking time out to heal

July 18th 2015 will be one year since I got discharged from hospital after my stroke.my daughter broke up from school that day and I felt so lucky to be able to walk a short distance with my stick to walk to the school gates, something that for the previous months I had not been able to do. This year they break up the day before my discharge anniversary but still perfect timing to begin the next stage of my recovery plan. 

I had planned to take a gap year when Cerys is 18 to visit Africa together. (if she still wants to go with her old mum when she is 18 that is ;) ) 
It was not in my plans to take one right now but it would seem that it has chosen me. Africa is not really a option right now. I am recovering right now and on my own personal journey I intend to embrace this upcoming year. Last year, in the summer holidays I was still quite poorly so these upcoming holidays I want to really enjoy my time with her. I could be working this time next year, who knows?

I am going to try my best to get all those boxes in the house unpacked and the house and garden looking pretty by July 18th. In anticipation of 

My taking time out to heal year 

First priority will be to enjoy the summer holidays with Cerys. 
2. Get on the journey of being super fit. (I have limitations but I can make a start) 
3. Complete a sewing project 
4. Make a memories book 
5. Grow a vegetable 
6. Practise make up on others 
7. Paint a picture
8. Read books/listen to music 
9. Take lots of photos 
10. Write about my experiences 

I am sure there are more things than that but ten is a nice even tidy number so I shall leave it there for now. Along side this obviously I will always be aiming to get stronger and be well. 

Monday, 15 June 2015

Everyday fail

I wish I was one of those "polished" types. There are many other things I want from life but that feels like something I can quietly at least have a chance of achieving right now. I am having a bit of time out of life to heal so why can't I heal and polish? 
I probably very unintentionally give the impression of not caring about such matters. For instance this weekend, I needed to wash my hair but unfortunately the shampoo was left opened and upside down on the bath rack so I went to use it it was empty. My hair not too bad of a state but I did not feel my best. I had woken up with a spot on my chin, luckily this is not a regular occurrence for myself but I along with my normal skincare routine dotted a bit of spot cream on it. I used to get my make up bag out every morning and apply whatever eyeshadow etc I felt like using that day but routine is extremely important to me at the moment and I am very pleased with my "current everyday make up look" I felt okay as I left the house that day in my self. I had taken my daughter to swimming lessons, something which I can not seem to cope with very well as yet. It tires me out so much and I'm not even the one swimming. Talking to my mum later on about this, she did say maybe I am not hydrating myself enough whist in there. Which is a very good point. Next time I go, I'm going to drink plenty of water before I go, I also have to remember to bring water with me. I am hoping to buy a backpack in the next few weeks with enough room for a water bottle for myself and my daughter and all the essentials that we may need on days out over the summer. After swimming, we went to do the weekly shop. While walking in to the shop, Cerys and her dad said to me " you look like you have got a spiders web on your face" I can only imagine that it was the spot cream. How embarrassing! That is the sort of thing that frequently happens to me even though I try so hard to look presentable. :) 
I am in the process of sorting through my wardrobe. I'm at one of those stages where I don't really know what size I am so I have got a few piles of clothes in my bedroom that need trying on to see what fits. I just want rid of clothes that don't fit well or flatter me and would love to go on a shopping spree to buy a few new items but I'm not working at the moment so anything I want to buy needs to be carefully considered. I have a pair of jeggings in a light denim which I wear a lot but they are slightly too big for me on the leg. I would really like a tighter pair with a few rips in. There are other things I need right now though, shoes!! At the moment I have one pair of skechers I wear all the time and a cupboard full of Shoes that at this moment I have no idea if I will ever be able to wear again. I would like a pair of white daps and a pair of sandals that are cushioned and easy to walk in. Also quite equally essential, I need to get measured for a new bra. I again am not sure what size I am right now. I think bra and back pack is the place to start. My daughter luckily has lots of nice summer clothes although I do want to sort her wardrobe out too as we will have sports day and a school concert coming up shortly so a inventory is due. Then of course I will need to start collecting new school uniform and school essentials for the "big" junior school. 
I am really trying to budget. I have so far got a sheet where I write all incomings and outgoings which I look at daily. I would like to by the end of the year have a bit of money in my bank account that is there just in case. I am currently living week to week and I'm doing okay but okay is just not good enough for me anymore. The problem I have right now is no matter what I am facing, I think to myself "if you can beat a stroke and learn to walk again you can do anything" I'm not afraid of failure, everyday I fail at something but occasionally I have those moments when I no longer fail at the thing I have been failing at for weeks or months before. What a great feeling that is! :) 

Thursday, 11 June 2015

Lego birthday

I was determined to make my daughters birthday a extra special one the year, through not fault of her own it has not been the easiest times of late. I wanted to achieve this for not only her but to also prove to myself that I could organise a party. Something that I have always loved to do. She originally wanted a lego themed party in a hall with a bouncy castle but everybody of course has the right to have a change of mind and suddenly she wanted to go to Legoland with Mummy. We are aiming to do this in the summer. It will give me a chance to plan, save and get stronger as no doubt she will ask me to do things there that will test me and I am trying really hard to be a "yes" person obviously whilst being sensible, I am making the most of my time at home at the moment and looking out for deals for anything legoland and london related. 
Her actual birthday fell on a weekday and  I am pleased to say I remembered a present, wrapping paper, birthday card, banners and birthday badge. I made her a voucher which entitled her to a lego party (we decided to do a house party with her friends at the weekend) and one trip to legoland and london. I had made the cupcakes for her party so placed some of these in the shape of a 7 for the morning of her birthday. 

We invited Nanny to have birthday breakfast with us

And she had a kindle as her present 

She went off for a day in school, she has never forgotten the first day she ever had her birthday in school, I had packed a cake and a note from me in her lunch box and she had kept mentioning this prior to her birthday. I think I did a pretty good at pretending I was not really listening to her properly and once again she had a note and a cake in her lunch box . She was delighted. 
We went for a birthday tea with Nanny L and Daddy after school and had lots of fun. 



Then at the weekend we got ready for her lego party. 




They played a few games but I did not get any photos of those as I was a bit busy and was also using my phone for music. Spotify is my new best friend. Lego spoon race was great fun. I tried to organise it well but in the end it was a case of "if you have got a spoon in your hand, pick up some lego and run" I think they all enjoyed it. I was pleased that it went so well, pleased that Cerys enjoyed it and so happy that my brain didn't get too tired to cope. The only thing I forgot was napkins which my mum kindly helped me out by plating up pieces of cake while the guests were still at the party. Daddy had provided the alternative to booty bags which were lego sets for the boys and a lego book for the girls. 

We continued the festivities by all gathering at my mums house to watch the Eurovision Song Contest. We had all chosen country's to cheer on and my sister had put in a little kitty for the winner. It did make it so much more fun. What a lovely day :) 





Wednesday, 10 June 2015

Pausing life

Me exactly one year since I had a stroke, looking a lot better than this time last year :) 
Yay, I have celebrated my one year since my stroke anniversary. I can now say I had a stroke over a year ago which makes it almost sound like a thing of the past. Obviously it is still something that I have to deal with daily but it gives me a glimmer of hope that one day it will be a small part if my life that happened once upon a time. I have been reading lots about strokes and in particular hemorrhagic strokes, the risk of having another stroke is higher during the first year after the stroke, something which scared me when I first came out of hospital but I will not go through that or put my family through that again if I can help it so I have been taking good care of myself and have luckily only encountered one incident where I had a bit of a scare. I think it was because I got a bit carried away enjoying myself to the point that I forget I can not just be that person anymore without remembering to take extra care. I had not drunk enough water throughout the day, probably not forced myself to take enough little rests (even though a lot of the time I don't feel like I need them at the time),I had a few glasses of wine to celebrate my birthday and felt like I had eaten too much in one go. All of those things combined were not a healthy mix and I ended up feeling faint. I was staying at a lovely hotel which my sister had booked for me as a birthday present. My current life consists of goals whether it be stroke related or not. One of my goals was to to stay in a country hotel. Tick. 
Me, my mum and sister at Court Coleman Manor hotel in Bridgend, Wales 
This is more of a true reflection of myself over the past year. Me in my pjs 
with my mum and both sisters celebrating my birthday in April. 

I celebrated my stroke anniversary with my mum, sister and my friend Bridie. I tried to book a meal in The Harbourmaster in the town where I live as I remember my mum saying a while back that she would know I was feeling better if I was asking to go there. It is upstairs, something that I have struggled with this past year. They were fully booked that particular evening so I will attempt to book again to celebrate when I can actually go downwards on a escalator. 
Me recently going upwards on a escalator. Partly achieved goal. 

Anyway I had a meal in a restaurant called Martha's Vineyard instead which was lovely. 


And I did get up the steps to the Harbourmaster after the meal where I enjoyed a small bottle of prosecco. 

I managed to also get down the steps after a stroke and a bottle of prosecco. Not bad going ;) 
I enjoyed a very nice evening of celebration. Tick.

My niece eventually got to see One Direction, one year later than planned (because of me ending up in hospital) 

And my sister Ceri got to celebrate her boyfriends birthday with no phone calls to inform her of bad news. Tick. 
I am so pleased to get over the one year mark and delighted that Rebecca had a lovely time watching One Direction and a little jealous that she got to see Mcbusted. ;) 

I was recently messaging one of my very best friends and she was saying how positive I am. I am not sure where this came from but I just want to write down here what I said incase I forget. 

"when you are forced to pause your life for a while, amazing things can happen" 



Friday, 29 May 2015

Falling in love with food again

Three days from today  will be a massive day for me. It will be one year since I had a stroke. It has been a year of varying stages of recovery and one year since my life had a major shake up. 
Straight after my stroke or to be more precise the first few weeks after it as I became aware of what had happened to me, I was told that it would take at least a year to recover. I have not recovered fully but I am still fighting hard and am extremely proud of all that I have achieved. I had so many questions, would I walk again? Would I ever be able to move my arm again? Were my major concerns. I was told that there was no way of knowing or answering those questions for me and that if I may just find ways to adapt to get by in life. I thought " no way, I want to get back to how I was" but

During this past year, I have had to do just that, adapt.  I have had to let go of what I was and how my life was before in order to move forwards. I do and have always believed that life will guide you in the right direction. I am not fully recovered but I am not bitter. Of course, I would rather that it hadn't happened but it has, my way of coping and staying positive has been to embark on a new journey of making my life better and healthier than ever all the while with the purpose of making the fact that I had a stroke define my life less and less. 

It is hard to believe the journey that I have found myself on these past twelve months. I didn't see this coming, that is for sure. 

Food 

I had left paralysis after the stroke to the point that I could not even understand that I had a left side on my body. I was of course confined to my hospital bed although for a couple of weeks after the stroke all I did was sleep. I had to have mashed up food, the choice of vegetarian mashable food was very limited and I became to dread mealtimes. I could tell they thought I just a fussy eater as I would get so upset at even the thought of the food being delivered. I think it was a combination of not doing anything or seeing any other view except for the hospital ward from my bed in between meals, the fact that every meal was a proper cooked dinner( albeit a mashed one) and finally the fact that it was tasteless. I did of course eat what I could (although I remember not touching the food on the left hand side of my plate for a while as I could see it but felt like it wasn't included in what I had to eat)  but I did start losing weight which they kept an eye on. The best test I have ever tried in my life was the biscuit test which I took a few weeks after the stroke. It determines how you are swallowing. I ate it fine and I don't think a biscuit has or ever will taste as good as that again. The choice of vegetarian hospital food is still rather limited but was much better than mashed everything. Of all the foods I was most excited to eat was salad. I have always loved salads in fact I have always loved food. 
Someone in the hospital asked me what my favourite meal was and I could not think. In fact I am still not sure what I would say is my favourite meal. I am sure I will remember or figure it out soon though. I am currently enjoying food again although I detest that feeling of eating too much ( it must stir up bad memories of being back in that hospital bed where I felt like all I did was eat all day) I have adopted more of a little and often approach to food and my mind seems to be mentally checking if it is a balanced diet all the time. I have never been a very balanced person but I am pleased with this current trait. I do hope it sticks around. 

Sandwich club

Yes, I was once a member of the sandwich club. I really wish I could have had some sort of certificate stating this fact as It does make me chuckle. I used to attend a little group in the hospital, I would walk there with my stick but my arm was not moving at this point. I also have to laugh at the fact that I chose to make a cheese and tomato sandwich. How on earth did I think I was going to chop the tomato? Answer you adapt. I could use the weight of my left hand to hold the tomato in place, obviously being very careful not to slice any fingers off and cut with my right hand. I can not begin to explain how tired I felt after making a sandwich. I mean it was a sandwich not a three course meal but over this past year the tiredness has got less and less with every sandwich I have made. 

I cook almost every day. My ways of adapting are planning in advance what are meals are going to be and we try to eat at 5pm each day so that it is not too late as I do start to get tired and clumsy as the evening approaches and I also want to make sure I have enough energy to wash all the pans afterwards. 

There are things that make my life do much easier in respect of food and they are buying grated cheese I have grated cheese myself since the stroke but there were tears- it's too mentally tiring right now. That would have to be my big task of the day should I wish to grate cheese so I choose not to do it right now. 

Frozen chopped vegetables- Again I can chop a vegetable if I need to but I am trying to keep things as simple as possible right now. 


And this timer. I talk to people sometimes and say how I don't quite trust myself not to make a mistake and I think maybe they think this is due to lack of confidence. I think it is me being sensible. I never know when tiredness can strike and I am always aware that I could have a bad day. This is rare but I would rather be prepared. This timer is used a lot by me during the day. I of course use it when cooking food. I also use it at various intervals during the day. I can so easily lose track of time or lose concentration so this helps keep me on the right track. There are many other funny little ways that have developed this past year but I shall just keep this post related to food today and not confuse myself. 
I am hoping to come back here and have an answer to what is my favourite meal over the next few months but food I am loving right now are eggs which reminds me of something else I need to mention
So-lo salt. I have made a really big effort in cutting down on salt in my diet. If I do have any, it is low sodium. I used to love salt on boiled eggs but have discovered if I eat boiled eggs once they are cold they seem to have more of a natural flavour that I enjoy without the need to add anything to them. Although peeling the eggs is not a task I love. I very stupidly peeled one over the bin a few days ago and as I had almost finished, dropped it. I won't be doing that again- peeling it over the bin that is, I can not promise I won't drop anymore. I love rocket salad. It has a strong enough flavour that it does not need anything added to it and I adore the taste. JalapeƱos and pesto are another of my current favourites. Yum. 
Another important fact I could mention here is the fact that yesterday I actually managed to open a tin of beans which did not have a ring pull. :) We and I include the cat in this have been dictated what tins we can have by the fact it has a ring pull or not lately. Maybe I should crack open a few tins on Friday to celebrate? :)